Jen's restlessness and confusion went on through the night and into the early morning hours. Her nurse and I spent quite a bit of time helping her back down into bed following episodes where Jen would get up and attempt to do things her imagination was creating. By 1:30 AM, the on call doctor authorized the use of an different medicine to relax her and hopefully reduce her hallucinations. Thankfully two small doses of Haldol worked and by 2:30 AM she was sleeping soundly for the first time in almost a week. She woke up around 6:00 AM having difficulty breathing and is now requiring a small steady amount of oxygen. This difficulty breathing is most likely a result of the amount of fentanyl she is getting around the clock. Once on the oxygen, she slept through the morning and afternoon somewhat restfully. She hasn't had much of an appetite the past 48 hours but sat up and ate jello on two occasions today while doing her best to carry on conversations with us. Tonight, I am praying that she will sleep as well as she did earlier today. I think I've praised them before, but the oncology nurses here on the 5th floor at North Kansas City Hospital are unbelievable. They give comfort both in the way they go about their work and in the way they treat us family members around the clock. I am constantly asking questions, analyzing their decisions, and making suggestions. They don't get angry with me at all but sincerely understand we want Jen to be as comfortable as possible every minute of the day.
Our two girls continue to be in good hands. They have split time between our house and Jan's. Various friends and family members have been watching them. We typically rely heavily on Jan, but she is now freed up and able to spend as much time as possible here at the hospital with her daughter. It is really important to us that Emma and Peighton see consistent routine and familiar, caring faces. We are able devote our full attention to Jen and not wonder one bit if the girls are doing well. Dennis, Tina, Jordan and Jason are also in town spending time with Jen and our girls.